Session 1: Introduction to ICC and genetics
Co-chairs: Bethan Cowley and Zohya Khalique
Royal Brompton and Harefield Hospitals NHS Foundation Trust
Wednesday, 26 January 2022
View the session recordings below.
Quiz / certificate
After viewing the recordings, try to answer the online quiz to generate a session certificate. You must correctly answer 6 of the 7 questions to pass. Correct answers may be viewed after submission of your form. (There is no limit to how many times you attempt to pass.)
ICC education: Introduction to ICC and genetics
Session 1: Co-chairs - Zohya Khalique and Bethan Cowley, Royal Brompton and Harefield Hospitals NHS Foundation Trust| Time | Topic / presenter |
|---|---|
| Welcome and introductions | |
| View recording | Overview of inherited cardiac conditions and services Dr Antonis Pantazis Royal Brompton Hospital |
| View recording | Sudden death in the young Dr Jan Till Royal Brompton Hospital |
| View recording | Screening in ICC Dr Nabeel Sheikh Guy’s and St Thomas’ Hospital |
| Patients know best | The patient perspective Patient story |
| View recording | ICC patient resources Ms Liz Wilson King's College Hospital |
| View recording | Panel discussion (Led by co-chairs) |
| Break | |
| View recording | Family history taking Mr Colin Evans Guy’s and St Thomas’ Hospital |
| View recording | Inheritance and genetic disease Dr Phil Ostrowski St George’s and Great Ormond Street hospitals |
| View recording | Counselling for genetic testing Miss Ellie Quinn Royal Brompton Hospital |
| View recording | Psychological aspects of ICC patient care Dr Hannah Levy Royal Brompton Hospital |
| View recording | Panel discussion (Led by co-chairs) |
| Quiz and feedback | Closing words (MCQs and how to obtain certificate) |
Bethan Cowley 
Bethan Cowley is the Lead Nurse for Inherited Cardiac Conditions at the Royal Brompton & Harefield Hospitals, having worked solely in ICCs for the last 14 years, both clinically and in research, and cardiology/CCU six years prior. She leads the largest ICC Nursing team in the UK that comprises of both adult and paediatric trained clinical nurse specialists. A nursing team that has pioneered many innovations in the area including hosting the first ICC Nursing and Allied Health Professionals study day in 2013- now an annual programme, the first ICC Nurse-led clinics in the country and first dedicated ICC Transition service. She is often invited to speak both nationally and internationally, teaches on the MSc programme in Cardio-respiratory Nursing and is involved in the ESC Working Group on Myocardial & Pericardial Diseases.
Bethan’s areas of interest are in patient advocacy, mainstreaming genomic healthcare, and the management of left ventricular outflow tract obstruction in hypertrophic cardiomyopathy. She is currently leading on a funded project evaluating ICC Transition across several hospitals with the aim to co-design services with and for their users.
Zohya Khalique
Dr Zohya Khalique is an academic clinical lecturer at the National Heart and Lung Institute, based at the Cardiovascular MR Unit at the Royal Brompton Hospital. Her interests are cardiovascular magnetic resonance (CMR), inherited cardiac conditions and heart failure.
She completed her medical training at Downing College, University of Cambridge and King’s College London. She started her specialty cardiology training in 2010 in London. In 2015 she began her research at the CMR unit, Royal Brompton Hospital using diffusion tensor CMR, a unique tool which allows in-vivo dynamic assessment of the microstructure of the myocardium. Her MD was awarded by the University of Cambridge and earned the Raymond-Horton Smith Prize for best thesis.
Her research investigates the microstructure of the myocardium in health and changes in disease, particularly in cardiomyopathy, with the aim to support diagnostics and therapeutic interventions.