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Session 1: NHS and Coronial Sudden Unexpected Death Project: The story so far

Thursday, 20 March 2025

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Agenda

  • Background and introduction (10 mins) – Dr Rachel Bastiaenen
  • The BHF Sudden Unexpected Death Project: The importance of data and results from the pilot (20 mins) – Prof Elijah Behr
  • The BHF Sudden Unexpected Death Pilot: Pathway development (20 mins) – Ms Claire Kirkby
  • Q&A session (10 mins)

Rachel Bastiaenen

Rachel is a Consultant Cardiologist at Guy’s and St Thomas’ NHS Foundation Trust where she is the Clinical Lead for Inherited Cardiac Conditions. She is also an Honorary Senior Lecturer at King’s College London.

She studied at Peterhouse Cambridge and Imperial College London. She completed Cardiology training in the London Deanery and a fellowship in Vancouver. Her PhD was awarded from St George’s University of London and involved non-invasive risk stratification of patients with cardiomyopathy. Her clinical and research interests focus on inherited arrhythmia syndromes, cardiomyopathies and cardiac MRI.

 

Elijah BehrElijah Behr

Professor Behr is a recognised national and international expert and researcher in the field of arrhythmias. He is Professor in Cardiovascular Medicine and Honorary Consultant Cardiologist specialising in Electrophysiology at St George’s, University of London and St George’s Hospital, London. He runs an Arrhythmia service and co-leads the Inherited Cardiac Conditions clinic at St George’s, coordinating a multi-disciplinary team that provides a single one-stop service to families including children. In addition, Professor Behr is president of  the Association for Inherited Cardiac Conditions (AICC).

Claire Kirkby

Claire Kirkby is an Inherited Cardiac Care Nurse Co-Ordinator for the North Thames Genetic Medicine Service Alliance.